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Old 08-31-2007, 07:21 AM
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Default Have you heard of a medical condition like this?

My Mom emailed me this morning with this site - a friend of her friend's new baby is here in the PICU at CHOC hospital with a condition that has the doctor's stumped. They want to spread the word to see if there is anyone out there who has heard of anything like this that might be able to share some info. You can read more about his condition here. And if you do have any information that can help, there is an online discussion area where you can share.

Regardless of that, prayers are always good.
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Old 08-31-2007, 07:28 AM
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He is so precious, I am sorry I have never heard of anything like that my prayers will be going to little Evan and his family.
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Old 08-31-2007, 07:32 AM
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That is so sad... I hope they find some answers soon!
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Old 08-31-2007, 07:33 AM
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So sad- poor little guy- He's got my prayers!
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Old 08-31-2007, 07:34 AM
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I posted a bulletin on my myspace... maybe someone will spread the word...

I'll say a prayer for Little Evan!!!
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Old 08-31-2007, 07:34 AM
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Never heard of a condition like that. Maybe they could send an e-mail to CNN, and have their medical specialist air it, could reach as many people as possible world-wide.
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Old 08-31-2007, 07:43 AM
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This is SO sad
If only there was something we could do to help!
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Old 08-31-2007, 07:47 AM
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My heart goes out to the family. He's such a handsome little guy.
I hope this story gets a lot of publicity and attention.
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Old 08-31-2007, 07:54 AM
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I do pray someone will be able to find the answers soon. It's so sad!
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Old 08-31-2007, 08:07 AM
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That is just heartbreaking! They are in my prayers
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